By Cassie Johnston
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A huge part of my treatment protcol for healing Lyme disease has been therapeutic diets. I always knew that diet was an important part of our total health picture, but I didn’t quite realize that the food we eat (or don’t eat) can literally be medicine until I had a group of health care professionals who were interested in treating my specific case of Lyme with (among other things) dietary changes.
The first therapeutic diet I went on back in September 2017 was the Autoimmune Protocol (or AIP for short). I didn’t have a Lyme diagnosis yet, and the prevailing theory at the time was that I was fighting an autoimmune thyroid disorder. While I was waiting for test results, I took things into my own hands and decided to start eating an autoimmune diet. My thyroid wasn’t the issue—a raging Lyme infection was—but in the end, the dietary changes I made were right in line with the changes most Lyme-literate medical doctors prescribe.
I stayed on the AIP for about three months, and then, right around Christmas 2017, I had a pretty nasty Lyme flare-up that sparked my naturopath to recommend a change in my treatment protocol. She recommended I change diets from AIP to the Specific Carbohydrate Diet (or SCD for short). I’ve been on SCD since January 11, 2018.
Since this is primarily a food website, I figured it was high time I explain to you guys what the SCD is, what it’s like being on it, and what I’ve figured out about it. Let’s dig in!
The Specific Carbohydrate Diet is a short-term (most folks are on it for a few years, but not lifelong) therapeutic diet that was originally designed to cure intestinal bowel disorders like Crohn’s Disease and Ulcerative Colitis. It was originally designed by Dr. Sidney V. Haas, but popularized by the mother of one of his patients, a medical researcher named Elaine Gottschall. She devoted her entire life to investigating and advocating for the Specific Carbohydrate Diet after it cured her daughter of severe Ulcerative Colitis. She quite literally wrote the book on the Specific Carbohydrate Diet.
If you want to know more about the science of the diet, you can read this here—it’s way too complicated for me to dive in here—but the basic idea is pretty simple: certain kinds of carbohydrates are not able to be fully digested by everyone’s bodies. Not everyone can digest complex carbohydrates well. When we have undigested carbohydrates in our gut, we’re overfeeding the bad bacteria and yeast in our intestinal tract. Feeding these bad guys dinner triggers a vicious cycle of excess toxins, acids, and gasses living in our guts, which causes irritation and disease.
Simple: you remove the foods that feed the bad bacteria and yeast. And this means any kind of complex carbohydrate: grains of all kinds, sugar, potatoes, sweet potatoes, and most dairy products (see a full list of legal/illegal foods here).
By giving your gut a break from complex carbs, your gut flora begins to stabilize and the body begins to heal. It’s not a quick process, but it’s effective and 100% natural.
True. I don’t have UC or Crohn’s, but you know what I do have? A rampant bacterial infection—Lyme (and it’s co-infections). And the whole idea behind SCD is to stop feeding the bad bacteria living your body. We’re starving out the Lyme. It’s not commonplace to treat Lyme with the Specific Carbohydrate Diet, but it is common for Lyme to be treated with a strict paleo diet (no grains, no sugars, no legumes, no dairy). The SCD is just taking the standard dietary treatment for Lyme a step further by eliminating all complex carbohydrates.
The biggest struggle by far is that the research and modernization of SCD pretty much came to a grinding halt the day Elaine Gottschall died in 2005. No one has “officially” taken over to modernize the diet based on new information or new ideas—which means finding new recipes, new product recommendations, or even people to connect with is tricky. Plain and simple, it’s out of date.
The closest thing you’ll find to a modernized version of SCD is the Gut and Psychological Syndrome diet (GAPS for short), which is based on the SCD principles. The two diets are essentially the same—with GAPS focusing on what you can and should be adding to your diet like fermented foods and bone broth—so you might find me switching over to GAPS in the near future just to have more resources at my fingertips.
The other big struggle I have is that since I’m not using this diet to treat it’s intended purpose (IBD), a lot of the goalposts the diet puts out are irrelevant to me. Introduce this when you’re without intestinal symptoms for three months. Introduce that when you’re symptom-free for six. I didn’t have those milestones to hit, so I just kinda had to wing it.
In some ways, the Specific Carbohydrate Diet is more restrictive than AIP (bye-bye sweet potatoes), but in other ways, it’s a lot more relaxed (helloooo, cheese!). I had such success on AIP that I knew when I started SCD, I wanted to adjust it quite a bit. Here’s how I’ve adjusted it:
Since the SCD works in phasing at the beginning, what I’m eating now at 2 1/2 months in on the diet is DRASTICALLY different from what I was eating in the first few weeks. I’m not going to lie, my diet was so limited at the beginning that I was in tears repeatedly during the first few weeks. Let me show you an example meal:
I know this doesn’t seem that bad, but imagine if you ate pretty much this exact plate (with slight variations) for every meal for weeks at a time. It. Was. Rough.
But thankfully, I am now on “full SCD,” meaning I can eat whatever I want from the “legal” list of foods. The variety is much better. Let me show you a typical day of eating:
All-in-all, not too bad, eh? Honestly, the only thing I *really* miss on this diet is chocolate. At least when I was on AIP, I could have carob, which was enough to squash a chocolate craving. The Specific Carbohydrate Diet is chocolate- and carob-free, and lordy, do I miss it.
I’ve already completed the full reintroduction process with the items that are SCD-legal. When can I start bringing back in non-SCD items (and start to wean myself off the diet)? That’s a little bit less clear. My doctor has said two years, tops, but it all depends on my healing. And quiet honestly, some things might never come back.
In some ways, absolutely nothing, but it other ways, obviously lots. There are 564 recipes on Wholefully (I just checked!), and almost all of those are not SCD-compliant. My team and I are working really hard to go back through those recipes to retest them, rewrite them, and rephotograph them so they are the best they can be. Which means you’ll still be seeing tons of non-SCD recipes coming through your computer screen as we work. I am so grateful to have an amazing team of talented women working for me and helping me make Wholefully the best resource out there for healthy eating made simple—whatever “healthy eating” means to you.
But I’m also feeling well enough to get back to recipe developing again, and because this is how I’m eating, inherently the vast majority of my new recipes are going to be SCD-compliant. But I don’t think they are only for folks following SCD.
As always, thank you so much for tagging along, making my recipes, and sharing my posts. A blog is such a unique thing because it is inherently tied to one person and the ups-and-downs and changes of their life—and the fact that you guys continue to ride on this roller coaster with me just means the world to me.
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I’ve said this before, but I want to say it again. Thank you so much for sharing this whole Lyme process with us…even the crappy parts. So many site and blogs only share the great things that are happening, somits so refreshing to hear you essentially say “Look, this really sucks, but here’s how I’m making it work.” You’re good people Cassie (and team).
I got sick in October 2016 and never felt right again. It was so odd, and trust me, when you google, “got sick and never felt right again” – nothing comes up. But what was my problem, something respiratory was going on. Tests were showing nothing, but finally my PCP tested me for food allergies and I had a gluten allergy. I always tell people my symptoms were not digestive, just respiratory. Following a gluten-free diet is very easy.
The hash looks delicious! How did you make it?
Here’s a post/video about how I make hash! https://wholefully.com/sweet-potato-hash/
I was diagnosed with Lyme disease in 2004. I was given antibiotics, which seemed to help. However, I still suffer from some of the symptoms, such as chronic fatigue, joint pain, and even neurological problems in controlling hand and leg movements. The inability to walk right etc, are temporary and generally happen when I am really tired and have been working hard. I lost touch with reality. Suspecting it was the medication I Went off the antibiotics (with the doctor’s knowledge) and started on Lyme disease natural herbal formula I ordered from GREEN HOUSE HERBAL CLINIC, I spoke to few people who used the treatment here in USA and they all gave a positive response, my symptoms totally declined over a 6 weeks use of the Green House Lyme disease natural herbal formula. I’m 70 now and doing very well, the disease is totally reversed! (Visit their website
Hi! I am close to starting this diet for fibromyalgia (possible lyme). I am encouraged that your able to eat everything so quickly. I do not have the digestive issues that others have so I am hopeful i can eat more foods sooner. I would like to chat more if that’s possible. Could we correspond though email? Thanks :)
Sure thing! Shoot me a line: firstname.lastname@example.org. :)
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